I’m writing this on the request of Dr. Chu, who was the surgeon who performed the Nuss Procedure surgery on me. Many of his patients have written down their experiences in Chinese, but none have been in English, so having a first-hand account in English would be useful for English speakers. Having spent the last few weeks with Dr. Chu, who I felt to be a caring, energetic doctor, I was happy to agree to the task.
CONTENTS
BACKGROUND 1
PRE-SURGERY 2
SURGERY 2
AFTER SURGERY 3
DAY 1 - ICU 3
DAY 2 – PAIN & PATIENCE 4
DAY 3 – SIT UP, STAND UP 4
DAY 4 – PRACTICE BREATHING 5
DAY 5 – PULLED OUT ALL TUBES 5
DAY 6 – WALKING 5
DAY 7 - LEFT THE HOSPITAL 5
DAY 8-14 – RECOVERY AT HOME 6
2 WEEKS – 6 WEEKS 6
6 WEEKS – 6 MONTHS 6
6+ MONTHS 7
CHINESE 7
BACKGROUND
Since I was born, I always had a “dent” in my chest. The dent was always about the size where my fist could fit into it without any difficulty. As a child, I remember making a game out of it. They would punch me in the chest, and we would pretend that they accidentally made a dent in my chest to the amazement of onlookers.
When I was around 12 years old, my parents asked me if I wanted to do an operation for my chest. At that time, the physician I was seeing said that it was mostly a cosmetic operation, and that I was physically more or less fine. Also the surgery seemed pretty major consisting of cutting open the chest. I thought about it, and being a bit more cautious and frugal, I decided against it. It seemed like not worth the risk or expense. I was quite healthy, athletic, and how often did I take off my shirt? Although I did feel a bit awkward taking off my shirt when swimming among strangers, especially when I was a teenager with the onset of hormones and peer pressure, I also felt that sufficiency was a virtue. I was quite content with what I had.
However, recently, at 29 years old, I began to have difficulty with physical activity and work. I felt like I could not keep up with those who were in their 50s.
PRE-SURGERY
I went through a series of tests at hospital: blood test, urine test, echocardiogram, CT scan of my chest area, electrocardiogram (EKG), breathing test, etc.
The tests showed that there were serious problems with my heart functions. The echocardiogram showed that there was a significant amount of pressure placed on the heart because of the dent in my chest. My pulmonary artery pressure was 38mmHg when my body was at rest, whereas the normal pressure should be around 10-20 rising to 30 if someone was running or exerting themselves heavily. At 38, my heart was working extra hard to pump blood throughout the body. The EKG test after I did about 5-10 minutes of light jogging showed that my heart had depleted oxygen, which is probably the reason for my fatigue doing physical activity. The results made it pretty clear to me that surgery was the best option.
The doctor also spoke to me a few times about the surgery itself, showing me pictures of others who had undergone the surgery, and played a video of the operation (which I must say looked really painful!). Video of operation from inside body: link, from the
outside: link.
He joked how the surgery was rather easy on the patient’s part because they just slept through it, and he was the one who had to do the work of the operation. It was said in good humor, and he said to trust him to do a good job. Given his broad, confident smile, and 400+ previous operations without failures (he actually was referred patients who had done other chest operations that had not worked out), I trusted I was in good hands. Still the night passed with a bit of anxiety. In my heart, I tried to call forth some courage and strength, “here we go...”
I was told not to eat past noon as the surgery was tomorrow morning, and I spent the night at the hospital.
SURGERY
The next morning, the nurse came and put in the intravenous line (IV). This was my first time getting surgery, so I must say I was pretty anxious. The anesthesia doctor came in and wheeled the bed to the operation room. It was actually kind of fun being pushed around in the hospital bed—a bit reminiscent of the childhood games in wagons or shopping carts.
Once I got to the operation room, there were around 5 people in the room. The anesthesia doctor put a needle in my back to apply the local anesthesia for my chest area. He touched different areas of my body asking if I felt any sensation, and I told him that I couldn’t feel anything in my chest area. Then, everything suddenly went black.
In what seemed like a few seconds, I woke up and was lying in the ICU (Intensive Care Unit) shaking. I was very cold, and I felt a strange pressure in my chest. The surgery was done, and there was a doctor there explaining to me what happened. There were three incisions on my body. Two were for inserting and “flipping” the metal rods that were going in behind my chest. And the other was for a camera to see what he was doing. There was also two marks around my sternum because he used a clamp to pull up my chest so that it would be easier to put in the metal rod without puncturing or damaging the heart as my heart was pressed quite tightly against my rib cage.
The doctor ended up putting 3 metal bars in my chest because of the depth and scope of my chest depression. He was initially just going to put in 2, but after putting in 2, my chest still had a bit of a depression. He then asked my father, who came into the surgery room, and decided that having another bar would be the best in terms of distributing the tension on my bones and for not having a depressed upper chest area. So, the doctor put in another metal bar. He secured them all on my rib cage and then sewed up the incisions.
Waking up after the surgery was a bit disconcerting. My shaking stopped after a few minutes, and although I felt a pressure in my chest, it was significantly less painful than I expected. I was far from comfortable, but the pain was manageable. I spent that night in ICU reciting a Buddhist mantra in my mind. It kept my mind focused on something so that it wouldn’t get pulled into doubts and negative thinking.
AFTER SURGERY
DAY 1 - ICU
In the morning, some of the hospital staff came in and took an X-ray of my chest and then wheeled me into the hospital room upstairs. The pain had slowly increased over the last 8 hours as the general anesthesia and pain killers used in the surgery were wearing off. It was still manageable though, but far from being pleasant. That day was probably one of the most difficult in terms of dealing with pain and immobility. I had never been hospitalized and bed-ridden before.
My dad ended up staying with me at the hospital taking care of me. I was pretty grateful for his support. He would use cotton swabs to allow me to drink some water, feed me through a straw when it was meal time, and help take off or put on blankets if I was cold or hot. I definitely felt a lot of gratitude for my father’s kindness. It was like being a little baby again. The kindness of parents is truly unfathomable!
DAY 2 – PAIN & PATIENCE
I was on a number of different painkillers including the epidural analgesia, a localized anesthesia, being administered at a slow regular rate into my chest area and a mix of morphine and other pain killers. However, often times the pain would be quite acute and I would find it a bit difficult to breathe and would ask the nurse to administer what they called “demo.” (It reminded me of “demolition”—either demolishing the body or the pain—probably both.)
The demo was injected directly into my shoulder and the effect could be felt after about 10 minutes where the pain diminished and my body relaxed. I didn’t feel too much change in my actual mental awareness as I was trying to stay mindful of what my mind was doing with all that was happening. Still, I was told that the demo was essentially morphine and highly addictive, so I should try to minimize its use if possible. They would only administer it in 4 hour intervals.
I had decided not to try to be heroic and bear the pain under all circumstances, but rather, stick with the middle. If I could keep my mind focused and be patient with the pain, I would do that, but if it felt that it began to get overwhelming, I would ask for a shot of demo.
I also had the experience of blood and “qi” flowing around my upper left area of my chest where my heart was. It felt like something got unstuck, like a hose getting unbent and everything was moving around. Although it was a bit uncomfortable, it felt like my body was returning to a more normal situation where my heart would have more space to pump. I also could feel my heart and lung trying to make sense of the new environment. It was a bit of a strange experience to have sensations from inside the body.
DAY 3 – SIT UP, STAND UP
The pain had become more manageable, but my back was beginning to feel very sore as I had been lying in bed for the last 60+ hours. I felt that my circulation was not very good and there was pain wherever the bones jutted out into the bed. It also was quite hot and humid underneath (partly due to the waterproof pad underneath my upper back), like I was being roasted on a hot plate. I asked my dad to help give me a massage on my back which helped a lot. Still after 30 minutes the pain would return and I would simply have to be patient with it.
Then, in the late afternoon, Dr. Chu came and took a look at my condition. He thought I was recovering quite well and helped me sit up without the support of the electric bed. That was quite an experience of trusting his strength and knowing what he was doing as I was told just to relax as he picked me up. I then sat on the edge of the bed and after getting acclimated to the new position (namely, my heart had to adjust to pumping blood to my head in a sitting posture against gravity whereas before it was used to pumping blood more easily while I was lying down), he helped me stand up. Again, that took a bit of trust. After that I was pretty exhausted, and I rested for the rest of the day.
Also, the painkiller was changed from morphine to Ketorola (“Keto” for short) as it did not have an addicting quality. The effect of Keto was not as fast, but it did help relax my muscles and reduce the pain when it became a bit too much.
DAY 4 – PRACTICE BREATHING
The pain decreased a bit and I was feeling a bit stronger. I was able to sit up occasionally throughout the day and was also given a breathing device with three balls in it to practice deep breathing. I practiced occasionally as the doctor recommended that I do not do it for too long periods of time until I was stronger.
My digestion improved and I was able to eat more solid food and had a better appetite. I also had my first experience using a bedpan. What goes in has to come out... so it seemed like my digestive tract was working all right.
DAY 5 – PULLED OUT ALL TUBES
On this day, Dr. Chu came and pulled out all the tubes in my body.
The catheter used for urination, the epidural used for localized anesthesia, and the IV that was going into my veins. He then helped me sit up, and then stand up, and was considering helping me walk, but I declined feeling quite a bit shaky still.
DAY 6 – WALKING
I felt a lot stronger and was able to get up and walk a tiny bit.
This was quite an experience given that I’ve been in bed for the last five days. The doctor said that I probably could go home tomorrow or the day after depending on how I felt.
DAY 7 - LEFT THE HOSPITAL
Feeling quite a bit stronger, Dad and I decided to return home from the hospital as I no longer needed to be hooked up to the machine and could walk around on my own. However, I still needed my dad to help me get out of the electric bed, put on clothing, use the bathroom, etc. But, I didn’t need any of the hospital services anymore.
As the room needed to be vacated before 12pm for cleaning, my dad and I left in the morning for home. The car ride was rather bumpy and painful. Upon arriving back home, I was quite exhausted and needed to lie down to recover. My dad had ordered an electric bed which was extremely helpful for being able to lay down in a gentle and smooth manner that did not twist and disturb my chest.
DAY 8-14 – RECOVERY AT HOME
Day 8 was significantly better than Day 7 (in fact, it probably would have been easier to have left the hospital on Day 8 as it was quite exhausting leaving the hospital on Day 7).
Day by day, I got stronger. And around the 10th day or so was able to get out of bed on my own after sitting up with the electric bed. I still needed my dad’s help for some basic functions, but I could be much more independent at this point. In general, I could get up, do some work on the computer for about an hour or so, and then I would need to rest again. The length of time I could stay up without needing to rest increased day by day.
2 WEEKS – 6 WEEKS
Day 15. I went back to see the doctor and he was quite happy with the results and my recovery. He had an x-ray done on my chest and the bars were in their proper locations. He told me to practice breathing by breathing in fully and then exhaling through parsed lips. This would help my lungs’ alveoli get stronger. At this point, I can walk around on my own pretty easily for short periods of time. I can also work for 2-3 hours at a stretch before needing to rest.
Day 21. I’m recovering quite well and am able to walk around on my own and take care of myself more or less. As an experiment, I tried getting out of bed without the help of the electric bed by using a bedsheet that was tucked in under the mattress. It was a bit uncomfortable, but I was able to get up. However, as my dad rented the electric bed for a month, I still think it is a lot easier with the bed.
Also, there is a sharp, needle-like pain on the left side of my upper torso where the scar is when I lie down. When walking and sitting upright, the sensation goes away. I asked Dr. Chu, and he said having some pain for the first two months after the operation is very normal. I should be concerned if there is inflammation or the contour of my chest changes. Another opportunity to practice patience.
6 WEEKS – 6 MONTHS
Day 30. I felt a lot stronger and went for a two-hour hike in the mountains. However, once I got back, I was quite tired and slept for quite awhile. In the early morning, I felt more pain in my chest than usual. Maybe overdid the exercise a little bit. I was a bit sensitive throughout the day, but by evening, it was not really a problem.
Day 50. Much better. I went on a relatively long road trip to visit a school and monastery without any difficulty. I am able to go on long walks without much problem, and I feel like my energy has returned. Using strength with my upper body is still difficult. Doctor says not to lift heavy objects. I can get out of the bed now on my own pretty easily if I hook my foot under the bed for leverage and then use my other hand to grab my foot and swing myself up to a sitting position.
6+ MONTHS
[I should be able to do most physical activities, but should still be careful about my chest and not dislodge the bars.]
病友朱聖鴻在手術後加入了保險業, 也願意為病友們以專業及經驗為其他病友們解答及咨詢相關保險理賠的問題. 聯絡方式, 留言或EMAIL msnlineage@hotmail.com
或facebook朱聖鴻
漏斗胸凹陷的嚴重程度在以前有許多不同的測量方法, 如躺下時在胸前凹陷處注水, 看能容納多少毫升的水, 作為凹陷指數; 在1987年, Dr. Haller, Dr. Kramer, and Dr. Lietman等人發表了以胸部電腦層檢測胸腔內橫徑除以胸骨至脊柱的距離來表示漏斗胸凹陷的嚴重程度.如下圖, Haller index =D/B, 
正常在2.5左右 當大於3.25 就已是有嚴重壓迫了; 當然, 這種方式廣為醫界所認同, 但以現在的水準來看, 卻顯得太粗糙. 尤其是定Haller index >3.25為手術與否的界線, 早已不合宜. 且只適用在對稱型的1A 及1B型作簡單粗略的評估, 對不對稱及併有脊柱側曲者, 就不適用了(如下圖)
對除了外觀及心理上的影響外, 最重要的手術適應症, 則是心臟及肺臟在壓迫下, 功能受了多大的影響, 才是最重要的.
http://www.wretch.cc/blog/evai1210w/12179834
在紀錄這篇說故事的經驗之前，必須先來聊聊什麼是「漏斗胸」。「漏斗胸」或「雞胸」都是屬於胸廓異常疾病; 這種疾病除了造成外觀上的困擾外，也會壓迫到心肺，可經由手術而改善，但因為症狀非為急症，所以較少被醫療界關注。
為了讓病友能有一個交流的管道，於是乎有了「漏斗胸協會」。這次說故事的活動，就是應該協會之邀，在病友交流的一個活動裡，為孩子們說一個小時的故事。這次，我準備了四個故事（其實準備了六個，但只用到四個），分別是《大嘴鳥兩罐的故事》（阿布拉）、《彩虹花》（小魯），還有歡樂的節慶繪本：《現在，你知道我是誰了嗎？》（和英）、《窗外送來的禮物》（上誼）。
因為天氣有點冷，所以其實參與的孩子不算多，可是卻因此拉近了彼此的距離，讓說故事及聽故事的人，可以以更自在的方式，享受這段時光。孩子的年齡分別是七歲、五歲及三歲，都是小男生。《大嘴鳥兩罐的故事》剛好適合那個七歲的孩子，而《彩虹花》則成了三歲的最愛，至於五歲的他，正好各取了兩個故事裡，他所想聽的內容；會選擇這兩個故事，也是帶了點目的性，一個是找尋自我，勇敢面對自己的與眾不同，另一個則是分享與感恩自己接受的愛。
聽完這兩個故事，也安排約十分鐘的時間，讓他們畫下心裡的感覺，就算沒有什麼特別的感覺，隨意地塗鴉也無妨。請他們分享畫作後，因應耶誕節的即將到來，將《現在，你知道我是誰了嗎？》的煙火，當作我送給他們的驚喜及禮物，說完故事剛好現場發送協會已事先準備好的小禮物，再以《窗外送來的禮物》作為呼應及Ending。時間點的安排及故事的內容，與孩子間的節奏都搭配得很好，在說故事的過程中，他們也給我很多回饋，產生許多有趣的笑點及共鳴。
現場有個七歲的男孩，反應相當敏捷。
「我第一個要講的故事是：《大嘴鳥兩罐的故事》，封面有什麼動物呢？」
「有烏鴉、烏龜、鱷魚……，他們在笑……」孩子們認真地看著封面說。
「…大嘴鳥的英文是Toucan，所以這是一個關於什麼的故事呢？」我問。
「鱷魚。」七歲的孩子大聲地回答我。
「！！」現場聽眾突然安靜兩秒，旋即開始恍然大悟地大笑，連我也是。
…
開場的第一個笑點，讓大伙似乎還帶著點清晨未醒的睡意，突然間都來了精神，氣氛也旋即熱絡起來。《彩虹花》裡的動物及顏色，也讓孩子猜得很高興。
……
「彩虹花為什麼叫彩虹花呢？」
「因為它有很多顏色，可是……怎麼沒有靛色？」孩子問，我也蠻想知道的。
「你們猜小螞蟻會拿什麼顏色的花瓣呢？」
「紅色？黃色？……」各種顏色猜一猜。
「冬天來了，彩虹花會再來嗎？」
……
中場安插的畫畫活動，有孩子因應我圖畫紙上設定的圓形，畫了個地球，旁邊還有流星及宇宙；而另一個孩子則是將方才聽到的故事角色，一一畫在紙上，而圖畫紙上的圓，則成了池塘，旁邊還有綠綠的草叢喲！這樣的活動，很適合與孩子深談繪畫內容，及為何畫在圓內或圓外的想法，就算孩子無法明確提出想法，也可以與他們聊聊畫裡想呈現的故事。
以前帶孩子到醫院打疫苗時，院方都有說故事活動，吸引不少孩子聆聽，我也常帶著女兒一同參與，總能收穫滿滿、開心地度過無聊的等候時間，或是順利轉移打疫苗的疼痛。因此，覺得能在醫院說故事，是和在書店說故事一樣，都是充滿意義的一件事，所以接到這次活動，真的蠻開心的，我能做的也就僅是如此，一個小時的歡樂而已，卻貪心且真心地希望他們「永遠快樂」！
佩怡來門診, 送我一幅婚紗照, 經她同意, 與大家分享她倆的幸福, 有情人終成眷屬. 緯倫的細心照顧真值得!
漏斗胸的分類, 目前以Dr. Park 的胸部電腦斷層分類較為詳細, 如圖:
1為對稱型, 其中1A是中央凹陷對稱型, 1B是廣泛對稱之平凹胸
2為離心(最凹點不在中央)型; 2A1為局部凹陷, 2A2為廣泛型, 2A3為較為不對稱離心之大峽谷型
2B最凹點仍在中線位置, 但僅一側凹陷; 2C 為最凹點在中央之兩側不對稱凹陷.
大多數病人的心臟是被凹陷的胸壁推向左側胸腔, 只有約1%會推向右側胸腔
Mini Review
A Look at the History of Surgery for Pectus Excavatum
Chih-Chun Chu (朱志純)
Formos J Surg 2011;44:1-5
Pectus excavatum is the most common deformity of the anterior wall of the chest, in which several ribs,costal cartilages and the sternum grow abnormally and produces a caved-in appearance of the chest. PE is usually considered to be cosmetic; however, depending on its severity, the deformed chest wall can compress the heart and reduce the thoracic volume, and impair cardiac and respiratory function, distort spine curvature, and cause pain in the chest.
A review of the literature shows that the first record of pectus excavatum was probably written in the 16th century by Johan Schenck (1531-1590). Bauhinus (1594)1 described a case in which the patient suffered from shortness of breath and cough as a result of severe pectus excavatum. In 1820, Coulson2 cited a family including three brothers with a funnel chest. In 1872, Williams3 reported a patient born with a pectus excavatum whose father and a brother also suffered from the same condition. Ever since, the reported cases have gradually increased, but treatment before the 20th century was limited to fresh air, breathing exercises and lateral pressure on the chest, all of which probably exerted no substantial beneficial effect. During those early days, technology of surgery and anesthesia was unable to overcome lung collapse during thoracic surgery, and the progress in treatment of pectus excavatum remained stagnant until early 20th century. Meyer in 19114 removed the first, second and third costal cartilages of a patient with pectus excavatum, but apparently did not attained the desired effect. Sauerbruch in 1931,5 performed surgery on a patient with pectus excavatum suffering from severe dyspnea in a negative pressure chamber wherein he removed a part of the anterior chest wall which included the fifth to the ninth costal cartilages, as well as a segment of the adjacent sternum. After the procedure, the patient was able to work, and even married three years later. It is difficult to imagine how science and technology at the time was able to complete such a type of operation. In the 1920’s, he had already advocated bilateral removal of costal cartilages and sternum transection in order to raise the anterior chest wall. After the procedure, according to Sauerbruch the patient had to stay in bed for external traction to hold the anterior chest wall in position for 6 weeks or more. Although the process was very harmful, the technology provided a method of treatment that had not been achieved before, and it soon gained popularity in Europe and the United States.
Fig 1. Compare before (A) and afte (B) Nuss procedure for pectus excavatum, the new technique leaves no surgical scar on the anterior chest wall
In 1939, Ochsner and DeBakey6 published their experience with the Sauerbruch's operation. In the same year, Lincoln Brown7 also published the experience with two of his patients and theorized that the funnel chest is caused by the short diaphragmatic ligaments and the continuous pull of the diaphragm. Adopting the theory and to avoid external retraction after operation, Ravitch modified the operation by complete mobilization of the sternum from its surrounding tissues, with transection of all sternal attachments, including the intercostal bundles, rectus muscles and diaphragmatic attachments. This surgical technique eliminated the need after surgery of an external device to lift the sternum. This is the current socalled traditional surgery most commonly referred to as the Ravitch procedure. This procedure avoid the external retraction but had a higher recurrence rate, and the concept of internal support merged. In 1956, Wallgren and Sulamaa10 introduced for the first time the concept of internal support technology.
They used a stainless steel bar pushed through the sternum to lift the depressed chest wall from the inside. In 1961, Adkins and Blades11 using a similar concept,placed the steel bar beneath the sternum, rather than through the sternum.
In 1958, Welch12 modified the Ravitch procedure by not cutting through all the intercostal bundles and rectus muscle attachments and obtained good results. Pena was greatly disturbed by the idea of resecting the rib cartilages of young children. Haller14 also published a report using the Ravitch procedure, but stated also that the chest wall loses its elasticity, thus affecting the respiratory function (acquired asphyxiating chondrodystrophy). Therefore, he advocated to decrease the amount of cartilage resected for surgical correction of pectus excavatum.
Wada in 1961 reported a corrective operation for the funnel chest wherein the sternum is turned over resulting from a convex to a concave shape. The above-mentioned surgical procedure is usually performed through a vertical midline incision or a bilateral submammary incision, and thus in addition to leaving an unsightly scars, the procedure easily causes the anterior chest wall to lose its organizational flexibility with a high recurrence rate.
In 1986, while using the Ravitch procedure, Donald Nuss was struck with the flexibility of the rib cartilages and instead of removing it, he took advantage of its flexibility and malleability. He used a U-shaped stainless steel bar passed through small incisions on both sides of the chest, and traversing between the pericardium and the sternum. Under thoracoscopic guidance, the strut could be easily passed through the retrosternal space, and also behind the sternum without injuring the heart or lungs. The strut was then flipped to elevate the depressed thoracic wall. After ten years of closed-door study, Nuss reported this new technique for correcting pectus excavatum in 1998. As a result, without resection of costal cartilage or ribs, no sternal wedge resection, a revolutionary change in pectus excavatum surgery occurred, and the treatment for pectus excavatum officially enters the era of minimally invasive surgery (Fig 1). The simple design of the Nuss procedure provides a universal way to correct pectus excavatum for different types and age ranges (Fig 2) of patients. The author has experienced patients from age 2 to age 48 with excellent results. Because of its simplicity, the Nuss procedure leaves much room for personal style and surgeons can gradually develop their individual style and characteristics.
Compared with traditional open surgery, the Nuss procedure provides a lower recurrence rate, less injury, better results, and a wide range of indications for different type and severity of pectus excavatum. Some severe complications, such as accidental penetration into the lung or heart, have been reported in performing the Nuss procedure, but under the direct vision of thoracoscopy, such complications are almost entirely avoidable. The prophylactic use of antibiotics and stabilizers certainly reduces the complications of implant infection and displacement of the the strut.
In failed Ravitch or sternum turn over cases, revision has been made using the Nuss procedure that demonstrated good results (Fig 3 & 4).
In 2005, Nuss was invited to Taiwan where he introduced the innovated surgical operation. So far, Taiwan has had more than five hundred patients that have undergone the Nuss procedure. As with other surgery, the treatment of pectus excavatum is geared towards the development of minimally invasive surgery. The Nuss procedure has been carried out under the guidance of thoracoscopy in our series of 304 cases and is proved to be safe mostly with satisfactory results. No life-threatening complications were encountered. The incidence of minor complications, such as displacement of the struts, wound infection, unsatisfied chest contour, and pneumohemothorax are totally less than 6%, and only 5 cases (less than 1.6%) need a second operation. It is probably safe to predict that minimally invasive surgery will be the mainstream in the treatment of pectus excavatum.
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打算在年底前, 週日, 舉辦病友聯宜會, 我想, 因年齡層不同, 話題也不同, 就分兒童組(12歲以下), 青少年組(13~20歲), 及成人組(21歲以上), 如何?
請大家多提供意見, 包括時間, 地點, 方式等等.
2011年11月23日 11:32
六月廿六日, 正好是期未考的前一天, 又是颱風天, 也不知那位天才選的日子
, 但還好, 仍有許多病友們來參加. 一早就有病友家庭們陸續來到康寧生活會館的會場, 開始交流, 然後是朱醫師的學術演講, 主要是漏斗胸的最新治療方法, 接著是周重維輔具師的演講,將漏斗胸及雞胸等胸廓凹凸等不同情況的輔具治療; 再來是李韋蓉心理師 的精彩互動式演講 "聽出沒說出的話--也談有效溝通".
中午用餐, 一面享用便當, 一面由病友們分享心得, 不同年齡層的病友們, 都有許多不同卻又有趣的見解及經驗, 讓酷酷的朱醫師也好像有點熱淚盈眶的樣子.
說也奇怪, 到了中午, 太陽的熱力稍減, 讓登白鷺鷥山的活動能順利進行, 這條登山步道大約只需卅分鐘才能走完, 說也奇怪, 等到大家完成登山, 解散後, 立即天降大雨, 真是天祐病友. 
Funnel Chest Party-2011 第三屆漏斗胸快樂派對
活動日期: 2011/6/26(日)
活動地點:
l 上午：台北康寧生活會館(台北市內湖區成功路5段420巷28號)
時間 |
活動內容 |
演講者 |
10:00~10:30 |
報到 |
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10:30~10:40 |
歡迎開場白 |
朱志純 理事長 |
10:40~11:00 |
漏斗胸的微創手術治療 |
朱志純醫師 宏恩醫院院長 國防醫學院外科臨床教授 |
11:00~11:20
|
凹凸胸的非手術治療 |
周重維 裝具師 台灣義肢裝具協會：理事、副會長 |
11:20~11:50 |
聽沒說出的話— 談有效親子溝通
|
李韋蓉 心理師 美國紐約市立大學諮商心理學碩士 美國俄亥俄大學特殊教育學碩士 |
12:10~13:40 |
美味午餐病友分享及交誼 |
康寧生活會館 |
13:40~15:00
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白鷺鷥山親山步道白鷺鷥山親山步道為內湖大湖公園旁，這條步道因左彎右拐、蜿蜒繞行而上，因此又叫五十彎步道，通常走至半途就已分不清東西南北方向了，所以指北針在這時是相當好用的。白鷺鷥親山步道谷地古老的蕨類植種類豐富，像是筆筒樹、觀音座蓮，其他如相思樹、江某樹也都長得頭好壯壯，能散發出令人心曠神怡的芬多精。
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Funnel Chest Party-2011 第三屆漏斗胸快樂派對
報名回傳表
參加姓名 |
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大人: 位 小孩: 位 |
聯絡電話 |
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註: 1.活動費用每人350元，於當天現場繳交。
2.請傳真至02-8791-0155 連絡人:謝佩芝Peggy(協會志工)(02-8791-2898 ext. 153)
交通指南
康寧生活會館座落於台北市內湖區，交通四通八達且臨近高速公路東湖交流交流道（康寧路出口），前往台北松山機場僅需15分鐘車程，至桃園國際機場約45分鐘即可抵達。
利用環東快速道路便捷的路線，快速抵達台北市信義區；或聯結市民大道，到達台北市中心區。
臨近內湖科技園區、南港軟體園區及汐止科技園區；三大科技園區的金三角地點，居住於會館於10至15分鐘即可方便抵達各園區。
會館緊臨著台北最美的大湖公園，休閒時遠離塵囂，遊園賞景，欣賞湖光山色，吸收大自然精華。
於2009年6月起，可搭乘南港捷運線，於葫洲站下車，步行約5分鐘即可到達會館。
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